Experiences and Care Pathways Shared on Social Media Regarding 5 Conditions Causing Chronic Pain
CompletedNCT07871578
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This study has no listed site in Canada in this snapshot. It is included as part of the worldwide chronic pain corpus.
Brief summary (from the registry)
Chronic pain is a major symptom shared by several medical conditions. This study focuses on five well-defined chronic diseases : Lyme Borreliosis (LB), Post-Acute COVID-19 Syndrome (PACS or "long COVID"), fibromyalgia, endometriosis, and rheumatoid arthritis. Although all of these conditions are associated with chronic pain, they differ in several important aspects, justifying their choice for a comparison. The overall objective of this study was to describe the symptoms, treatments, and healthcare pathways associated with these five conditions, as reported by patients on social media platforms and online forums. The specific objectives were to compare PTLDS with the four other conditions across the following aspects: (i) Incompatible symptoms reported by patients; (ii) Different components of pain : physical, emotional, and social; (iii) Healthcare pathways; and (iv) Adherence to treatment recommendations.
Study details
- Official title
- Is Lyme Borreliosis Experienced Differently From Other Chronic Pain Conditions? An Infodemiological Analysis of Symptoms, Treatments and Healthcare Pathways
- Conditions
- Lyme Borreliosis
- Fibromyalgia
- Rheumatoid Arthritis (RA)
- Post Acute COVID 19 Syndrome
- Endometriosis
- Sponsor
- Central Hospital, Nancy, France
- Collaborators
- University Hospital, Strasbourg, France; University Grenoble Alps
- Start date
- 2025-03-17
- Primary completion
- 2025-07-03
- Sex
- All
- Results posted
- No results posted in this snapshot
- Countries
- France
- Total sites listed
- 1
Eligibility criteria
Show eligibility criteria (verbatim from the registry)
Inclusion Criteria: * posts had to be published on four platforms: Instagram®, Facebook®, Twitter®/X®, and patient forums * they had to be publicly available (i.e., from open accounts); * they had to include one or more of the following keywords in French equivalents: "fibromyalgia", "Lyme", "long COVID" (for PACS, because this term is not used by patients), "endometriosis", and "rheumatoid arthritis" * posts had to be written in French. Exclusion Criteria: * none
Source: ClinicalTrials.gov (US National Library of Medicine), snapshot October 2026. Check the registry for current recruiting status. Record: https://clinicaltrials.gov/study/NCT07871578