The Living With a Long-Term Condition Study
Unknown statusNCT06072287
View the official record on ClinicalTrials.gov Recruiting status changes often. Contact the study team listed on ClinicalTrials.gov, and talk to your doctor before joining a study.
This study has no listed site in Canada in this snapshot. It is included as part of the worldwide chronic pain corpus.
Brief summary (from the registry)
Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and clinicians to provide interventions specifically tailored to the challenges of living with a LTC and therefore provide the most appropriate support for these patients. Such a measure would also be useful in research to identify the presence of illness-related distress in different patient groups. This project will therefore create a new measure of illness-related distress that has applications for both research and clinical practice. This will involve the psychometric validation of the new illness-related distress measure to test how valid and reliable the measure is. The aim of the project is to provide initial validation of the Illness Related Distress Scale in a community sample, recruited through online platforms. The objective of the study is to gather initial validity and reliability data for the scale.
Study details
- Official title
- Testing the Reliability and Validity of a New Measure for Illness-related Distress.
- Conditions
- Asthma
- Atrial Fibrillation
- Cancer
- Cerebrovascular Disorders
- Stroke
- CKD
- Copd
- Fibromyalgia
- Pain
- Heart Diseases
- Heart Disease Chronic
- Dementia
- Diabetes
- Epilepsy
- Heart Failure
- High Blood Pressure
- Hypertension
- Hiv
- Aids
- IBD
- IBS
- Liver Diseases
- Long COVID
- Lupus Erythematosus
- Multiple Sclerosis
- Obesity
- Osteoarthritis
- Arthritis
- Rheumatoid Arthritis
- Osteoporosis
- Parkinson Disease
- Sickle Cell Disease
- Hepatitis
- Endometriosis
- Pcos
- Neurological Disorder
- POTS - Postural Orthostatic Tachycardia Syndrome
- MND (Motor Neurone DIsease)
- Cystic Fibrosis
- Migraine
- Spondylitis
- Celiac Disease
- Hidradenitis Suppurativa
- Eczema
- Me/Cfs
- Interventions
- Diagnostic test: Living with LTC Questionnaire
- Sponsor
- King's College London
- Start date
- 2023-06-28
- Primary completion
- 2023-12-31
- Sex
- All
- Age range
- from 18 Years
- Results posted
- No results posted in this snapshot
- Countries
- United Kingdom
- Total sites listed
- 1
Eligibility criteria
Show eligibility criteria (verbatim from the registry)
Inclusion Criteria: * Over the age of 18 * Self-reported diagnosis of a Long-Term Condition * UK resident * Possession of an email address to enable all study procedures * Sufficient command of written and spoken English to understand study procedures Exclusion Criteria: * Under the age of 18 * Not living in the UK * No self-reported diagnosis of an LTC * Inability to complete questionnaires in English
Source: ClinicalTrials.gov (US National Library of Medicine), snapshot October 2026. Check the registry for current recruiting status. Record: https://clinicaltrials.gov/study/NCT06072287